Mike and I met with my oncologist this morning to determine my treatment plan. After going over all of the options, we’ve decided to go with IL-2 immune therapy. It seems to be the best option for me and it still leaves the door open for other drugs if needed.
Next week I’ll have a PET scan and another MRI as well as blood work to make sure everything is ok to proceed and to set a baseline. Then, the following Monday, I’ll be admitted to the hospital to start treatment. It’s 5 days in, treatment given through IV every 8 hours, then home for a week, then back in one more week. Best case scenario is that this does the trick in shrinking it away, so fingers crossed for that.
The potential side effects freak me out. I know that every patient is different, but we all know that having a “really bad flu” isn’t fun at all. I’m hopeful that the treatment will work, the side effects will be manageable and it won’t overall be too terrible. Good thoughts and prayers always appreciated!
It sounds like I’ll have a private room, which is very important to me – I don’t want to be around other people if I don’t feel good! I’m figuring if I can take my own pillows and blankets and wear my own pjs, it will make things a little easier. I hate the unknown, so not knowing what side effects I will suffer from is disconcerting.
Being away from Mike and the boys for a week will suck but I’d rather be sick in the hospital instead of sick at home. Hopefully it won’t be too bad for them. I will miss them terribly though. In the grand scheme of things, being away from them for 2 weeks really isn’t that big of a deal. I hope they agree.
So that’s the news for now! Later, we get to tell the boys. Wish us luck!!
{ 10 comments… read them below or add one }
Good luck and sending good thoughts and healing wishes to you. xo
Wishing you all the best. So glad you will have privacy… Your love for your family will carry you through. I’ll be thinking of you.
Good luck. Sending all good vibes in your directions.
Sounds like a heavy process, but you can do this. I’ll be cheering you on.
Geez, sucks. Wish I could do something to make it all better honey. Positive thoughts coming your way, and let’s get on dinner next week!! Please let me know if there is anything you’ll need help with- either while you’re at home or in hospital- I am happy to help! So much love and hugs!!
Fingers crossed and sending prayers.
I’ll be thinking of you, wishing you successful treatment, minimal side effects, and continued strength and courage.
I’m so sorry you’re going through all this. Been thinking about you. Will keep thinking about you.
xo
Hope the tests all go well for you this week and the same for the treatments the following week.
Glad you have a plan and hopefully you have minimal side effects and ones that can be easily medically managed. (Do not fear asking for Zofran, it is heaven on earth). Sending you love and strength. xo