Welcome to my life..my family..my world..unedited.

I was sent home on Friday morning again, after a horrible week of IL-2.
Actually, I don’t remember much of the week…I begged let them drug me up pretty well because of the constant sickness.  I remember seeing the boys and them having to leave because I was entering chill mode; I remember Shine bringing me a Slurpee like the awesome friend she is, and I remember my mom and brother coming. And then my mom and mil came and spent the night.  Pretty sure I thought I was done for at that point.
Anyway, it sucked. I was able to get 6 more treatments, which made Dr. L happy.  (Pretty sure I told him I didn’t like him very much at one point as well) and at the end of June I’ll have another PET scan to see what kind of progress was made (there had to have been some, because I’ll be damned if I went through that for nothing!) There are many variables that will determine what the next plan of action is, so in the meantime, I’m going to heal and rest and enjoy not being in the hospital.
It’s kind of hard to be home because I seem all …

Fell off the blog wagon after Day 2!
Days 3 and 4 got worse each day. I couldn’t eat on Wednesday, which made the treatments even harder, I think. I’ve never been good with a lot of medication, and especially not on an empty stomach. I was nauseous and needed the bathroom a lot. The itching wasn’t too bad, but the stomach issues made everything seem a LOT worse.
I was sent home Friday morning after receiving a total of 9 doses of the IL-2. My doctor was very pleased.  I was really thinking that the recovery was going to be super smooth.
HA!
I’ve been in bed ALL WEEK. What started and continued as exhaustion and nausea, turned into the flu and then a nasty cough later this week. I cannot believe how much I’ve been sleeping!
We spent 4 hours at the ER yesterday to find out that I, indeed, did have a cough. I was prescribed antibiotics and cough meds. This afternoon I called my doctor and told him that I wouldn’t be taking those. I’m so sick of being sick to my stomach.  I need a couple of days of NO meds before I start again on Monday.
Tomorrow is the boys’ …

Wow, I know that kids are resilient, but oh my, is this kid of mine amazing!!
Last night, he couldn’t get up off of the couch or back on the couch after going to the bathroom and he was walking on his tip-toes to get around while using the death grip on our hands.
By the end of today? He’s standing, sitting, kneeling down for things, getting on and off the couch on his own and playing with the neighbors!! It’s obvious he’s still in pain, and I fully expect that, but the turn around from yesterday to today has been fabulous!
Of course, I’m totally worried about him overdoing it, especially since there’s just a tiny little steri-strip over his incision.
I’m thrilled that he’s doing so well.  I’m a little concerned that I’ll need to stay home on Monday since he has trouble leaning over to pull up his shorts, but we’ll cross that bridge when we come to it.
In the meantime, I’m relieved my baby is smiling and laughing again.

Thursday I got Tubey removed.  It actually didn’t hurt at all (yay for numbness!), and just for fun, I did look at the part that had been living inside my leg.  Um, GROSS.  I mean, really, gross.  The cool thing is how fast that little hole healed up…it’s still a little icky, but for the most part, it was like magic!
I started yesterday wearing my sexay compression stocking. Very snug but not too bad…until today that is. Today, after I had been walking around the house, cleaning up a bit, it started to bug me. Upon further inspection, it had slipped down my leg and was bunched around my knee. Huh.  Not going to stop a lot of swelling if it doesn’t stay up, now will it?! I obviously either didn’t have it up high enough (yes, it’s a thigh high) or it’s really not the right size.  Although, my upper inner thigh IS still fairly swollen, so that may have something to do with it.  Either way, pain in the arse!
The boys had their last soccer game today. It was windy and cold and I’m pretty sure the parents were more excited for the end of the season than …

Ok, I’m done with this stupid tube being in my leg…I’m done being stuck on this couch…I’m done wearing yoga pants and a bandana to cover my hair every day…I’m done with this whole cancer thing.
What’s that? I don’t have a choice on the cancer thing?  Oh, alright.  But I AM done with the rest.
Fingers crossed, tubey comes out tomorrow along with the remaining 4 staples.  My drainage is almost at the right spot, but moreso, they don’t want to leave it in much longer time wise, so tomorrow we head to U of M Cancer Center again and hopefully leave some things behind.
I still have my MRI & CAT scans to do, but once those are done and checked out, I’m hoping for at least a few month reprieve from that part of Ann Arbor.
The numbness in my leg is getting better and I am definitely walking a lot better, with less of a limp.
Tomorrow I will find out my next steps in the process of taking care of myself.  I want to be able to drive, to go on walks, to play with my Wii Fit and EA Active; I want to be able to clean the house …